What's Happening -
Age-Related Macular Degeneration - has now been associated with excess iron found in autopsied eyes.
Several of our Board Members were featured in a major medical journal CAP (College of American Pathology) published August 20, 1998 The article was on hemochromatosis.
See pages 36-44Presentations by the leading iron experts in a variety of cutting edge categories can be seen along with the results and announcements of on going research.
Our President and Founder Roberta Crawford made a presentation at the International Iron Conference held at the Center for Disease Control in Atlanta May 8& 9, 2000. Her topic " The Consequence of Iron Overload."
Our Vice President Steve Barfield also at the same CDC meeting gave a presentation on "The At Risk Population in the U.S.". It counts up to 42 Million persons that may have a problem with too much iron.
What is your experience with Medicare. Contact US Congressman Mark Foley - Palm Beach, Florida and US Congressman Michael Bilirakis - Tampa, Florida
IOD publishes a bi-monthly newsletter: Ironic Blood It includes a feature article, News About You association news, research participation opportunities, meetings info. and newly emerging medicine pertaining to iron overload in its various forms.
IOD writes to all the Governors in the US asking them to declare Sept. 16-21, 2003 as IOD Awareness Week. We do this every year. This is one of our ten programs and part of our 20 years of service. We then write to all the media that we can afford to and tell them of their governors signing and what they should know about the dangers of excess iron . Iron Overload is easy to diagnose and easy to treat. The only thing we lack is Awareness.
Increasingly blood banks are taking advantage of the new ruling by the FDA to remove the barriers from using hemochromatosis blood as donor blood. Recently Mt. Sinai Hospital Blood Banking system of New York has joined these ranks. The American Red Cross and The American Association of Blood Banks have been put on notice. At this point there are no excuses for blood shortages.
We have on-going research into:
a. Iron and the Brain
b. Delayed Diagnosis
c. Problems of Health Insurance and Iron
If you have a personal history to contribute, research items or have have questions about any research contact: Steve BarfieldWe wish to welcome to recent additions our Board of Directors:
Arturo Rolla MD Harvard University in Cambridge, MA
Kenneth Bridges MD Harvard University in Cambridge, MA
Joannes J M Marx MD PhD Utrecht University - Holland
Gordon D. McLaren MD University of California - IrvineCardiac Screening Available at the NIH for Newly Diagnosed Hemochromatosis Patients
A complete cardiac evaluation is provided to participants at no costs and transportation
is provided. If you are 21 years of age or older and have been recently diagnosed with
hemochromatosis, contact the National Institutes of Health at: 1-800-411-1222 (TTY# 1-866-411-1010). Their e-mail address is: prpl@cc.nih.gov .
Recently diagnosed means no more than three phlebotomies. This will aid this section of the Department of Health and Human Services in an important investigation in the the relationship between excess iron and heart problems.
For more information on iron overload please contact:
IOD
433 Westwind Drive
North Palm Beach FL 33408-5123
email: iod@ironoverload.org
561-586-8246
866-768-8629 Toll FreeWe hold all correspondence in the strictest confidence
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Copyright © 2002 by Iron Overload Diseases Association, Inc. - ALL RIGHTS RESERVED